Home care for children with chronic illness involves a number of considerations.The concept of providing care at home for children with chronic illness has resulted from a desire to save cost as well as to look after children in an environment that is more conducive to optimal development. There can be nursing visits to provide care, especially after discharge from the hospital. There can be hospice care for the terminally sick. The need for technology-dependent home care has increased as a result of improved survival of trauma and severe illness, improvements in cancer outcome, and more aggressive care for neuromuscular disorders. Although the cost of providing medical care in the hospital. The other main advantage of home care has been that the results have been successful.
The family needs to want to manage the child in the home setting. They must be motivated to provide care and often they will have to make sacrifices to make it work. There is a need for trust between the provider and the family. This may take time to learn to trust the nurse and once they do they may be reluctant to trust others. Many families learn a great deal about the child's condition and may feel that the nurse that comes for an 8-hour shift may not be as committed as they would like. It is helpful to have case management so that there is an individual who is responsible for the coordination of care. The family needs someone they can contact should there be a disagreement about the treatment of the child.
The benefits of home care in addition to cost reduction include:
- A shorter hospital stay
- Improved quality of life
- Involving patient and family in care
- Allowing technology-dependent patients to be managed in a comfortable and familiar setting.
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